Thanatophoric Dysplasia such a strange word. Can't even say it, yet it has turned our world upside down. My oldest daughter who is 22 weeks pregnant, baby was just diagnosed with this. This is a fatal condition. The baby will sometime abort but sometimes it will go full term but die shortly after. I have been reading on the internet and found some babies have lived, but it looks like it would have to be with medical intervention such as feeding tubes, support breathing etc.
How is my daughter doing? It's tough! But not for a moment would she consider aborting the baby. She understands our Heavenly Father's plan and knows that there is a purpose for this. This baby has already proven itself in life's trails. It must have been a very noble sprit of god in heaven. It only needed to come to earth to receive a body. What an honor to carry such a valiant sprit. But.. it still isn't easy.
Our youngest granddaughter went to Brandi the day that she found out that her baby had some form of Dwarfism and said "Aunt Brandi, I want so bad for Preston to be a dwarf!" She didn't know but it brought Brandi to tears. Strange that Snow White and the seven dwarfs came out now, McKenzie only wanted Preston to be a dwarf for Halloween.
So many little things happen like that each day. Siblings announcing they are having babies. Stockton said it is a lot like wanting something really bad for Christmas and watching everyone else get it. But they are happy for these other little spirits coming in to the world.
We must look at this as an opportunity to be Disciples of Christ and to declare him in all things and accept the challenge the best that we can. We will put all things in Gods hands and have total faith that there is a reason and god knows what we can handle even more than we know
Sam is such a rock in all of this. He always has treated Brandi like a queen and now he is so tender with her. I am so proud to have him as a son in law.
How is my daughter doing? It's tough! But not for a moment would she consider aborting the baby. She understands our Heavenly Father's plan and knows that there is a purpose for this. This baby has already proven itself in life's trails. It must have been a very noble sprit of god in heaven. It only needed to come to earth to receive a body. What an honor to carry such a valiant sprit. But.. it still isn't easy.
Our youngest granddaughter went to Brandi the day that she found out that her baby had some form of Dwarfism and said "Aunt Brandi, I want so bad for Preston to be a dwarf!" She didn't know but it brought Brandi to tears. Strange that Snow White and the seven dwarfs came out now, McKenzie only wanted Preston to be a dwarf for Halloween.
So many little things happen like that each day. Siblings announcing they are having babies. Stockton said it is a lot like wanting something really bad for Christmas and watching everyone else get it. But they are happy for these other little spirits coming in to the world.
We must look at this as an opportunity to be Disciples of Christ and to declare him in all things and accept the challenge the best that we can. We will put all things in Gods hands and have total faith that there is a reason and god knows what we can handle even more than we know
Sam is such a rock in all of this. He always has treated Brandi like a queen and now he is so tender with her. I am so proud to have him as a son in law.
We appreciate those putting out the arms to us and especially Brandi and Sam and their little family. These are going to be an interesting few months
4 comments:
You guys are such a strong family, that has gone through so many things. I look up to you all. You guys are in my prayers. You know I am always grateful for our religion because we know that we will all be together again at the other side. I love you guys!
Shirley-
I was so sad to hear about Brandi and her family. We are thinking of all of you.
Bridget
I'm so very sorry. I don't know you, but I do know how you all feel. Especially your daughter. My son was born this June with Thanatophoric Dysplasia also. I wanted more than anything for him to be born healthy and live a long normal life. God's plans are much mightier than ours, though. You seem like a very faithful and Godly family. I will be praying for all of you. If your daughter or anyone else in your family needs someone to talk to, please don't hesitate to contact me. There is a link on my blog to a facebook group for families affected by TD.
Much love and prayers,
Becca Church
www.OurLittleLambmcc.blogspot.com
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